This abbreviated version of our Privacy Policy is designed to highlight for you what types of personal data we collect when you complete a screening through our Services, how your data is used, with whom it is shared and your rights regarding your personal data.  Please know you can always review the full version here. This Policy does not apply to the processing of your personal data if you are potentially accepted into a clinical trial at a later date.

Leapcure acts as the Processor of your data on behalf of our client and obtains consent from each individual we collect data from in order to determine if that individual is eligible for clinical trials for which we are recruiting.

 

Data We Collect. When you complete a screening through our Services, you may provide to us:

We use the following tools for automatic data collection:

How We Store Your Data:

We store all of the above-referenced information collected from individuals in our TLS/SSL secure database, which has restricted access to essential individuals and is password protected. The data is stored in a localised database in Dublin, Ireland, and Frankfurt, Germany. 

How We Use Your Data:

Contact details and clinical trial preferences.  This data will be used to contact you if you meet the requirements for a clinical trial. If you do not qualify for this clinical trial, but provide your consent for future consideration, your contact details and participation preferences will be kept on file to inform you of future clinical trial opportunities.

Health data.  This data will be used as necessary to assess your eligibility for the clinical trial. If you successfully complete the initial screening process through our Services, which means meeting the clinical trial study criteria as a possible patient participant, you will then be connected directly with the clinical trial research team at a study site so they can further evaluate your participation in the clinical trial. 

User experience data.  We may use this anonymous data for user experience  purposes, such as improving our website and screening questionnaire experience and to better tailor experiences to website users, including to analyse and improve the Services provided and promote our business.

Marketing and advertising. We may collect and use your contact information for marketing and advertising purposes. 

Disclosure of Your Data

Your personal health and clinical-trial–interest data may also be shared with the sponsor of the clinical trial (and/or representatives working on the sponsor’s behalf, such as data processors) in pseudonymised form for the purpose of sharing updates on clinical trial patient recruitment efforts and asking questions about specific considerations for patients on the clinical trial. Whenever, in the course of our Services and the disclosure of your data, Leapcure must transfer personal data outside the European Economic Area (EEA) or any other regions with substantive data protection laws, Leapcure ensures that personal data is transferred in line with this Policy.  More specifically, Leapcure will always inform you and seek your explicit consent before your data is transferred out of the EEA or any other region for our Services.

Your Data Protection Rights:

Your participation in our Services is always voluntary.  Every user is entitled to the following:

If you make a request, we have one month to respond to you.  If you would like to exercise any of these rights, please contact our Data Protection Officer at: privacy@leapcure.com

Retention:

Data is not kept beyond ten (10) years under any circumstances, unless required by law. If you have asked us to do so, we may retain your contact details and participation preferences to inform you of future clinical trials. 

Minors:

The Services are not intended for use by children under 13 years of age.

How to Contact Us:

If you would like to learn more about Leapcure, please email us at info@leapcure.com or visit our website (www.leapcure.com) to request information.

I wish to be considered for participation in a clinical trial about Thyroid Eye Disease (TED), and understand that this will involve submitting specific data relating to myself and my health.  I have read the abbreviated Privacy Policy, and Terms of Use, have been provided the full versions, and I agree to the processing of my data by Leapcure, Inc. for the purposes of assessing whether I meet the initial screening requirements for participation in the clinical trial. I confirm that I understand that Leapcure, Inc. will collect data automatically about my user experience on the Leapcure, Inc. website, for the purposes of improving the user experience.